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Amazing Amanda: My Journey Through Mito

16-year old Amanda Perrotta lost her battle with Mitochondrial Depletion Disease in November 2008, but her zest for life and her zeal to help others motivated her to write words that would be uplifting and encouraging to others with terminal illness. Bridging the gap between dry medical texts and the lives touched by any life-stealing disease, this book serves as an insider's guide to the road ahead for those and their families struggling with illness and as an insightful and often funny look at hospital stays, suffering, pain, denial, joy, and most of all, living life as the only cure for Mito.

File Size: 2620 KB

Print Length: 570 pages

Publisher: Create Space; 1 edition (December 15, 2009)

Publication Date: December 15, 2009

Sold by:  Digital Services LLC

Language: English


Text-to-Speech: Enabled

X-Ray: Not Enabled

Word Wise: Enabled

Lending: Not Enabled

Enhanced Typesetting: Enabled

Best Sellers Rank: #599,313 Paid in Kindle Store (See Top 100 Paid in Kindle Store) #71 in Books > Children's Books > Growing Up & Facts of Life > Health > Physical Disabilities #78 in Kindle Store > Kindle eBooks > Medical eBooks > Basic Science > Genetics #241 in Kindle Store > Kindle eBooks > Nonfiction > Children's Nonfiction > Science, Nature & How It Works > Health

I have adult onset Mitochondrial Myopathy. I have also been the caregiver for a family member who dealt with many pic line and jtube issues.With that said, I found this book to be permeated with the joy that was Amanda.Ignore the occasional garbled sentences and feel life lived to the fullest.

This is a journal about a young girl suffering from Mito--a rare disease with no known cure. Amanda takes you into her day-to-day world, her fight against the disease, her hopes, her dreams, and her big life lessons that leaves everyone thinking: How can I be a better person?Having since read Amanda's journal, I have often found myself asking, "How would Amanda handle this? What would Amanda do?" Amanda was and IS an amazing young girl who lead a difficult life, but one with diginity and grace and love. Her lessons and always positive upbeat attitude toward life is her gift to those her read her book.

Amanda was an incredible little girl. She has some wise insights into life, suffering, etc. in her journal. She will never cease to amaze me.

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